Archive for the 'sorting it out' Category

May 25 2008

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Katie

Recent Dabblings

In amongst keeping up with all that life hands us, I have managed to work on a few crafty projects. Shortly after I returned from my trip I got a custom order through my etsy shop to do some hand dyed yarn that was based on the colors in The Very Hungry Caterpillar. It was a fun order to do and I was very pleased with the results. But it really drove home the fact that even though I am feeling a bit better than I was earlier this year that I am far from ready to take on any real work. I put all the energy I had into the project and then proceeded to go to bed and not get up for several days. I am bummed about my limitations, but it was fun to do and helped me remember the thrill I get from making pretty things.

VHC1

VHC2

With limited budget (as in zero budget) for acquiring of new yarn for my stash, and a need for a significant but not too brain taxing project I decided to give a Log Cabin style blanket a try. It is a stash buster project using up all the odd bits and bobs left over from other projects and a few odd skeins that have been with me for way to long and needed to be used up or given away. My original intent for it was to just make something for the family. We can always use another nice warm blanket. But then I remembered that our friends are getting married in late June and it would be a perfect wedding gift for them. They are very eclectic people and it is definitely an eclectic blanket. So far it measures roughly 2ft x 2ft and I am hoping to make it no less than 4×4. I might need to raid some yarn from my shop to meet that goal but if ever there was a reason to do so, making the perfect gift for good friends is as good as it gets.

log cabin WIP

I have a few other projects that I would like to get started in the next few weeks. I had hoped to make a shrug with some nice cotton that my friend Anna gave me last year before I go to Seattle in July. I’m not sure that I will get to it by then, but it would make a good project to work on while I am there if I don’t finish it before hand. I have another project planned that I really want to get done before the end of June, but again I am not sure that it will be possible. Its another gift for another wedding and I can’t say anything more because the recipient just might be reading this blog. But if I don’t get it done before that wedding I will give my apologies and get it to them as soon as possible. Hopefully before their first anniversary!

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Jan 25 2008

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Katie

I’m Angry Today.

Filed under coping, sorting it out

And I am fine with that.

I admit that I have massive discomfort with feeling angry usually. Not to say I don’t feel anger, quite the opposite. My habitual responses to anger are to either react swiftly and harshly, or to deny it flat out, keeping it stuffed safely from view of others and myself. Not the most forward thinking way of dealing with matters. I know this, but the thing is that in order to access something you know means engaging the brain in thought. Habits don’t hold conference before we fall effortlessly into them. No thinking required. I could do it in my sleep, which is ironic given that lack of sleep also makes habitual behavior all the more likely. Tough nuts to crack, those habits.

Beyond the raw reaction of my habits, I try to go with the more ‘enlightened’ approach and follow the anger to its source, which is always a fear of something or another. Its helpful and it does have the effect of lessening the furor of my wrath, even reducing the frequency that I even feel such ominous anger, but being willing to look at it closely can be a frightening proposition. Staring into the face of the anger of one’s most formidable of foes - your own self - and not being gripped can mean risking having your world shattered. Not always a bad thing, mind you. But it is the challenge of a lifetime. Maybe even it is the core challenge of this lifetime .

And then there are days on which I am just to pissed off to take a deep breath. And today is one of those days. I see it, I feel it, and I am simply not in the mood to follow it anywhere. The one possible exception being to watch it go from rantings to an audience of dust bunnies and stacks of empty tablet packets here in my tower of exile bedroom, to words on The Internets.

Today I am angry and that is okee-dokee. I am angry that anyone who is ill should have to spend one drop of their precious energy into responding to those who doubt,blame, ridicule and abandon them. We don’t have to look far back in time to see illnesses and conditions that were once unexplainable or misunderstood that we now have evidence of their existence and the ability to treat if not cure them. New discoveries are made every day, but there are still those who refuse to believe that fibromyalgia, ME, CFS, et al exist at all just because they don’t have a range of normal on a blood test to measure us by. And at the same time they are quick to blame us for the existence of our (supposedly non-existent) illness on our choices and lifestyles. Double kick - I don’t believe its there, but its your fault if it is. I am angry I used up several of my precious spoons getting up, showered, dressed and out of the house to have a couple social hours with friends and that I ended up the better part of those social hours fielding questions about my mysterious illness and whether or not it might have karmic significance or energetic stagnation. News flash - it doesn’t matter if you are blaming my illness on some evil deeds of my former incarnations or my failure to clear a glowing plug from my aura. Its still blaming. Its still assigning of fault to someone who is ill. Mind you I believe in karma, past lives, auras and other ideas that get me filed in the wacky bin in many people’s view. But in my dream of it all these are tools for growth and awareness, not instruments of retribution or failure. I am angry that I am certain there was nothing but positive intention when I was asked by a trusted friend if I had considered metaphysical causes of my illness, because I have in truth already looked at that view. I know she only wants to help me find a way to feel better, I know this because that is what I wanted. Its is still all I want. I am angry that I have come to a place in my illness that someone else’s caring can be a spark for such anger. There is hope in blame, the hope that you really might have control and choice is alluring. I am angry that hope and anger go hand in hand.

There are many other things that I was steaming about when I began to write this. They don’t really seem to be getting to me now, so I will let them lie. It wasn’t what I meant to happen, but there it is. The words I have written are telling me to follow them. They are the thread, the fuse leading to the bomb. I see it. Not sure that I have the guts to disarm it today.

4 responses so far

Jan 22 2008

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Katie

Traveling With Chronic Illness

I am going on a cross Atlantic flight in February and I know all too well that the effects of such a trek are hard for the toughest of bodies. A chronic illness makes travel a beast of different proportion. I barely make it through the check-in line before my legs,feet,and back are screaming at me. Carry on bags with laptop and camera might as well be concrete blocks anchored to my shoulders with twine. (Do not ever suggest I don’t bring things. Its not going to happen. ) I will be alone which adds to my need for comfort and efficiency. I am thinking about finally getting a walking stick to help me get through long airport concourses. But my fear is that it will be another thing to carry. There is always the wheelchair option and the slow moving beeping people carts. I just don’t think I am ready for that mentally. Physically - yes. But in my mind I can’t go there. Perhaps I will change my mind when the inevitable reality of the multiple discomforts of travel hits, but until then the plan is to hoof it. I am thankful for the ability to choose, or I suppose more accurately - the illusion of choice. Somehow it feels like if I can, I should. Should argh. Will. I will. I will do exactly what I am able to. breathe. repeat.

What are some of your best tips for travel chronic pain and illness? I will be on the road for 6 weeks, going between two primary locations with long haul flights on either end. What are some of the best ways to prevent stirring things up more than is needed. (Do I invest in a foldable cane? Seriously. Do I?) and how do you recover from the stress and pain that can’t help result?

One response so far

Jan 21 2008

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Katie

Simple Gifts In The Midst Of A Flare

Filed under coping, crafty, sorting it out

dylan earrings2

Originally uploaded by Divinely Crafty


The weeks leading up to Christmas this year were marked by one of the worst flares to date in all the years I have lived with fibromylagia.

Normally the holidays are a time of busy crafting and creating. I have always loved attending to the details that make holidays special times. Not always showy or grand, but always with heart.

This year was no exception I am glad to be able to say. I had picked up a good bit of beads and jewelry making supplies when we were in Barcelona with intentions of making more felt / glass bead pieces. I had only used a few as originally planned, and with the addition of some lovely beads my sweet Anna brought me from her time in India this summer, I had a brilliant collection to choose from for little holiday treats.

Pictured above is a pair made for my oldest daughter,Dylan. Gorgeous Indian glass rounds with Chinese medallions. May they bring her good fortune.

Next is for Kiah. A mix of Czech glass and silver. Elegant with an edge, just as she is.

kiah earrings

Delicate stones with a touch of sparkle for Anja. Her first pair of dangly earrings. If the grin on her face when she tried them on means anything, it was a special gift for a special young girl!

anja earrings

All three pairs made in a quiet, stress free afternoon. I was able to sit comfortably in my bed with supplies neatly laid out before me thanks to a bit of organization that I confess is actually unusual for me. There is something about scads of tiny glass and stone bits that begs even the most die hard of mess-makers to straighten up and invest in a few fish tackle sorters. Biscuit tins make great storage for tools, wires, and such and the lids double as work surface. Complete with raised edge to prevent an errant bead from rolling off and into the sheets where it would without doubt cause a painful living interpretation of The Princess and The Pea that night.

The earrings were received with delight and I have seen them worn on many occasion. Dylan reports that her mates at school are asking about buying some if I make them to offer. Not sure what I think of that, but it could be fun. I’ll tuck that aside to consider on another day.

For now I am in the process of re-visiting crochet and the quest for the perfect string bag pattern. Wish me luck as I foray into thus avoided territory of SC, Ch St, and a host of abbreviations I have little understanding of! I will report back shortly with progress.

I hope.

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